The title word *Extraordinary* applies to the acting performance of the entire cast, Fraser, Ford, Russell, Fraser's on-screen kids... everyone is indeed *extraordinary*.
The little girl, Megan, even looks like Fraser, the cast was so good.
The performances were credible. Fraser looked tired all through the movie (with his new responsibilities, the moving, etc. he *had* to look tired), Ford had this "don't bullshit me" attitude, yet somehow they make through together.
As for the story, it gives viewers a sense of hope. Hope that someone will hear their cry for help. Hope that somebody will listen to them. Hope that someone will somehow one day find a solution... a cure for the Pompe disease.
A must-see.